Simon Rubenstein on Navigating Alopecia, Making Change for NAAF & Creating Confidence Artwork

Very Nearly Almost

Having had alopecia areata since the age of two, Lindsey Sullivan is very nearly almost bald or very nearly almost has a full head of hair. It all depends on how you look at it. Everyone has that thing about them that they have had to learn to love--perhaps they're still struggling with it. Through snippets of her own story and interviews with inspiring guests, Lindsey explores the ups and downs of alopecia areata--and other secret super powers.

All Episodes

Very Nearly Almost

Simon Rubenstein on Navigating Alopecia, Making Change for NAAF & Creating Confidence

September 06, 2024 • Lindsey Sullivan • Season 1 • Episode 36

0:00 | 44:07

Happy Alopecia Awareness month! In this episode, Lindsey interviews Simon Rubenstein. He’s the youngest board member on the National Alopecia Areata Foundation Board of Directors. He's also a film director, a producer, a writer, a photographer, a multicam operator, a community organizer and a business entrepreneur. They discuss the importance of empowering others in the community through choice, be that treatment access, wigs or rocking what you’ve got. Simon also shares about his experience navigating purchasing and wearing a wig as a guy and curating confidence through activity and community as opposed to looks that can’t be controlled. He really puts the highs and lows of hair loss life in perspective, both personally and as a front-facing NAAF board member and role model for the alopecia community. Plus, he shares his thoughts on recently FDA-approved treatments.

Follow Lindsey on Instagram at @verynearlyalmost and @lindssully. Visit lindseysullivan.net and vrynrlyalmost.com for more.

The information provided in this podcast is for educational and informational purposes only and is not intended as medical advice. Always consult with a qualified healthcare professional regarding any medical concerns or treatment options. The views expressed by guests are their own and do not necessarily reflect those of Very Nearly Almost.