The Power of Policy, Storytelling & Ayanna Pressley: Go Inside the D.C. NAAF Conference Artwork

Very Nearly Almost

Having had alopecia areata since the age of two, Lindsey Sullivan is very nearly almost bald or very nearly almost has a full head of hair. It all depends on how you look at it. Everyone has that thing about them that they have had to learn to love--perhaps they're still struggling with it. Through snippets of her own story and interviews with inspiring guests, Lindsey explores the ups and downs of alopecia areata--and other secret super powers.

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Very Nearly Almost

The Power of Policy, Storytelling & Ayanna Pressley: Go Inside the D.C. NAAF Conference

September 13, 2024 • Lindsey Sullivan • Season 1 • Episode 37

In this episode, Lindsey takes you inside the 2024 National Alopecia Areata Foundation conference. It took place this past June in Washington, D.C.

The D.C. setting is an important one for alopecia advocacy work. As listeners know all too well, it’s an election year. It feels like government and public policy are at the forefront of minds and memes, but all that stuff can also feel so divisive and simply out of reach. And what might any that have to do with alopecia? Well, as it happens–a lot! NAAF has an entire Legislative Liaison program in which people with alopecia all across the country–and members of their support squad–aim to meet with their local legislators to implement real, tangible change for those with hair loss. Don’t worry – Lindsey and special guests from this year’s conference -- including NAAF co-founder Donna Murray and Congresswoman Ayanna Pressley -- are going to break it all down for you. Plus, head to Capitol Hill for Advocacy Day and learn all about the Wigs as Durable Medical Equipment Act.

Next year’s NAAF conference will take place in Chicago on June 26, 27, 28 and 29th.